Oireachtas Joint and Select Committees

Wednesday, 19 December 2018

Joint Oireachtas Committee on Health

General Scheme of Assisted Human Reproduction Bill 2017: Discussion (Resumed)

9:00 am

Dr. Joanna Rose:

Yes. There was frustration with the type of research that was going ahead, such as Susan Golombok's. It validated, for example, parents being given a choice as to whether they tell their children that they are donor conceived and often asked the parents how the children were doing and then had results that reported the children were doing fine. I had a great sense of frustration about that which led me to my PhD. There is a list in the information I provided to the committee of proactive donor offspring around the world. They are the people one needs to consult rather than people like Susan Golombok in terms of understanding the long-term implications because it is when we are adults that finding out that one has 30 or 40 half-brothers and sisters has a major impact on one's identity. That is when one is grappling with the real stuff. I wished to draw the committee's attention to those proactive donor offspring and the kind of things they have had to set up in their own time and with their own funding. There is no place to turn to and say, "I need some help with this and I need some funding to set up this service". As a trade union representative, the Deputy will understand the importance-----

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