Oireachtas Joint and Select Committees
Wednesday, 21 November 2018
Joint Oireachtas Committee on Health
Evaluating Orphan Drugs: Discussion (Resumed)
9:00 am
Professor Michael Barry:
It makes a recommendation on each specific product that is referred to it. The examples I gave were sapropterin or Kuvan and shortly nusinersen or Spinraza, so it will make a recommendation incorporating the clinician viewpoint and the viewpoint of patients and their families.
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