Oireachtas Joint and Select Committees

Wednesday, 21 November 2018

Joint Oireachtas Committee on Health

Evaluating Orphan Drugs: Discussion (Resumed)

9:00 am

Professor Michael Barry:

It makes a recommendation on each specific product that is referred to it. The examples I gave were sapropterin or Kuvan and shortly nusinersen or Spinraza, so it will make a recommendation incorporating the clinician viewpoint and the viewpoint of patients and their families.

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