Oireachtas Joint and Select Committees

Wednesday, 21 November 2018

Joint Oireachtas Committee on Health

Evaluating Orphan Drugs: Discussion (Resumed)

9:00 am

Photo of Alan KellyAlan Kelly (Tipperary, Labour) | Oireachtas source

I understand that and I agree that it will be across Europe. In terms of the women affected, it will work for some but not for others. I am not saying that this is a miracle drug in any way, shape or form but it seems to be helping Vicky Phelan, with whom I am in contact a lot. In other cases, it may not help but all of these women will do anything they can, regardless of whether they are in the cohort of 221, to get a chance at life. The drug is made in Ireland. How can we collectively justify the fact that it is outside the process outlined by Mr. Flanagan? I agree with him and yet we have a decision to give it free to some women who are part of the cohort of 221 . No one can stand over that; it is impossible to justify. We cannot distinguish between a lady in Loughrea who is crowd-funding in an effort to raise money to get this drug and to get a chance at life and those in the cohort of 221. I would like to hear the opinions of all of the witnesses on that.

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