Oireachtas Joint and Select Committees

Wednesday, 21 November 2018

Joint Oireachtas Committee on Health

Evaluating Orphan Drugs: Discussion (Resumed)

9:00 am

Photo of Louise O'ReillyLouise O'Reilly (Dublin Fingal, Sinn Fein) | Oireachtas source

Do the witnesses accept that there is a problem with the current system? Do they accept that notwithstanding the work that has been done to bring families into the process to some degree, the families are still experiencing difficulty with the process and their level of involvement in it? I am not saying that the people in this room do not work hard; I fully appreciate that they do. However, do they think the system is okay and working in spite of the views of patients and their families that it is not working? The problems do not solely involve access, but also that the process is not working for patients and they feel left outside it. Do the witnesses accept that improvements must be made and that there is work to be done? If they do not, I would be concerned.

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