Oireachtas Joint and Select Committees

Wednesday, 21 November 2018

Joint Oireachtas Committee on Health

Evaluating Orphan Drugs: Discussion (Resumed)

9:00 am

Mr. Philip Watt:

There is also cynicism. Recently I talked to people involved in pharmacoeconomics across Europe and they all seemed to have the sense that somehow patient groups were in the pockets of pharma companies. To be honest, it is really insulting. As patient groups, we would be betraying patients if we ever advocated for use of a drug which was not effective. That would be disgusting and we need to be more robust in showing that is the case. Clinicians are accused of the same because they are involved in clinical trials and so on. It is so simplistic and wrong and needs to be challenged.

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