Oireachtas Joint and Select Committees
Wednesday, 8 November 2017
Joint Oireachtas Committee on Health
Evaluating Orphan Drugs: Discussion (Resumed)
9:00 am
Rose Conway Walsh (Sinn Fein) | Oireachtas source
I appreciate that. I do not have enough time to tease out all the data. Would the HSE be prepared to sit down with the drug company? It is unprecedented for a drug company to take legal action. God only knows how much it will end up costing in legal fees. I am sure it will be far in excess of what Translarna for two little boys would cost. Would the HSE be willing to sit down with PTC before this goes to court to try to work out a cost and provide conditional approval albeit that there may be additional data? It is very hard for people to understand why those two little boys cannot be the same as their peers in 18 other EU countries.
No comments