Rose Conway Walsh (Sinn Fein) | Oireachtas source

Perhaps we can examine how the decision was made, because I know it was rejected on the grounds of cost and of data. On the cost that has been quoted, as opposed to the real cost, I want to know how much negotiation was done with the drug company to come to an agreement on a reasonable price. I understand the figure quoted by Professor Barry is based on a ten year old boy because Translarna is subject to the weight of the child. For someone like Lewis, who is six years old and whose weight is different, the cost of that is immediately reduced. What negotiations have taken place on price? Did the drug company name a price? Did the witness go back to it? How many times did he go back to the drug company to get that price reduced?