Oireachtas Joint and Select Committees

Wednesday, 8 November 2017

Joint Oireachtas Committee on Health

Evaluating Orphan Drugs: Discussion (Resumed)

9:00 am

Professor Michael Barry:

The point I am trying to make is this highlights that there is uncertainty around the clinical evidence of this drug. That is exactly what we found when we looked at the data. It is not that we are saying products do not totally work but rather that perhaps they do not work well enough. Maybe they do not bear any relation to the price being asked for them, which can be as high as €400,000 per patient per year. That is the issue.

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