Oireachtas Joint and Select Committees
Wednesday, 8 November 2017
Joint Oireachtas Committee on Health
Evaluating Orphan Drugs: Discussion (Resumed)
9:00 am
Louise O'Reilly (Dublin Fingal, Sinn Fein) | Oireachtas source
The families of the kids who are waiting to hear about the availability of this drug are very anxious and are watching these proceedings. They do not believe a mistake was made but, rather, a certain amount of compassion was shown. With regard to most of the countries where it is available or the countries the witness listed where it is not available in any form, conditional or otherwise, is he specifically saying it is not reimbursed in the mainstream way through the public health system? He can take any of the countries named as an example. Is it available in those countries and reimbursed on a conditional basis or otherwise or is it simply not available under the public system?
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