Ms Vera Twomey:

I wish to respond to a comment by Deputy O'Connell about Frisium and Rivotril. When I mentioned that, I was only speaking on an individual basis. I did not mean to speak about anybody else's circumstances. I was just referring to the experience we had with those medications. The Deputy spoke about making a catastrophic mistake. From our perspective we have only ever wanted to do absolutely everything as perfectly as we possibly can for Ava. Ideally we would have wanted the CBD to be available in conjunction with the doctor from the very beginning. She spoke about doing it carefully; we also very much want to do things carefully. We do not want any kind of radical move made.

At the same time people in our situation, with a child who is dangerously ill, need this as soon as possible but done correctly. We do not have any options left. It is incredibly important for people to realise that we have exhausted every other avenue available to us and we need a solution for Ava as soon as we possibly can. We want it done correctly but we need it as soon as we can possibly avail of it.