Colm Burke (Fine Gael) | Oireachtas source

The letter states: "Given Alexion would be highly restricted in terms of what we could discuss with regard to pricing negotiations in Ireland as well as our global experience and position, we must respectfully and regretfully decline your invitation at this time." The company clearly does not wish to discuss pricing and the cost of the medication it provides. Is greater transparency needed in this area? We had hoped to discuss the cost of a specific drug, as we still do not know what price is being paid for it.