Jerry Buttimer (Cork South Central, Fine Gael) | Oireachtas source

That is a good point to end on. We might ask that the patient groups involved in the rare disease task force might update the briefing to include the fact that the HSE has made funding available, as Ms Byrne commented, although it is not mentioned in the service plan - just to be fair in terms of outlining both the positives and the negatives. I thank the group for its excellent presentation and research. I thank everyone for coming. We all need to advocate the implementation of the plan and to understand, as Ms Daly rightly said, that "rare" does not mean "few". As a committee, we are committed to working with all of the witnesses to ensure the implementation of the plan is strong and successful.