Oireachtas Joint and Select Committees

Thursday, 26 February 2015

Joint Oireachtas Committee on Health and Children

Implementation of National Rare Disease Plan 2014-18: Discussion

9:30 am

Photo of Jerry ButtimerJerry Buttimer (Cork South Central, Fine Gael) | Oireachtas source

We were briefed by the patient groups involved in the rare diseases task force and they stated there had been virtually no effort to inform or consult patient groups. Is that the case and can it be changed? Can they be accommodated and included?

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