Dr. Jennifer Hoblyn:

I cannot tell the committee how many I have on my waiting list. Bloomfield is a fledgling service but I have a large number of referrals of people sitting in acute psychiatric hospitals across the country for two years. The number of misplaced young people in nursing homes is tragic. We need specialist services from multidisciplinary teams which understand what is going on. We need to educate by creating a training post in the College of Psychiatry and making it part of the SR, senior registrar, rotation. We are working with Crumlin hospital and its genetic counsellors are working with us. We need to have an integrated approach. From the time of diagnosis, we need to target cognitive, psychiatric, mood and anxiety treatments before anyone has any other symptomatology so they are aware of what is available. We need the whole spectrum all the way through to palliative care. It is very difficult to find anyone with expertise in the area of speech and language.