Oireachtas Joint and Select Committees

Thursday, 15 January 2015

Joint Oireachtas Committee on Health and Children

Coping with Challenges of Huntington's Disease: Discussion

9:30 am

Dr. Jennifer Hoblyn:

In terms of collaboration, it will be fantastic now that we have an Enroll-HD site, if not two or three, here. We have also started to get some Irish members involved in the working groups. We are on the nurse-psychiatry group, the physiotherapy group and the cognitive psychology group. Slowly, as we get out there and meet our colleagues, including at the meeting in Paris in a few weeks' time, we hope to build networks and to get them to visit us. We have been visiting all around the place, but we had one young fellow visit us last year who was cycling across Europe as part of his effort to raise funds. It was amazing to see. We are just beginning.

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