Séamus Healy (Tipperary South, Workers and Unemployed Action Group) | Oireachtas source

I welcome the witnesses and thank them for their presentations and the documentation they submitted to us prior to this meeting. I am sorry that I could not be present for Dr. Pender's presentation this morning. Huntington's disease is obviously an incredibly difficult illness. Ms Towey made reference to a prevalence study, and I would like to know the current status of that study. Has it been completed or is it in progress? What is the timeframe for that? Ms Towey also mentioned funding for individual HD patients to access services. What types of service is she referring to? What types of service would typically be necessary for HD patients? Reference was also made to a national genetic service, and I ask the witnesses to expand a little on that.