Ms Patricia Towey:

Some services are developing for Huntington's Disease in Ireland and we are calling for those to be supported. These services include Beaumont Hospital's psychology clinic, Galway University Hospital's neurology service and Bloomfield Hospital's multidisciplinary team, mental health assessment service and long-term care. These are fledgling services for Huntingdon's disease. Our recommendations include sustained funding for the Huntington's Disease Association of Ireland, which is the sole provider of information and support on a national basis to those impacted by Huntington's Disease; establishing and developing services in existing sites in Dublin such as Beaumont and Bloomfield hospitals, Galway and Cork; clarifying funding streams to enhance urgently needed access to appropriate individualised care; developing evidence-based clinical pathways across regions in an equitable and transparent manner; securing long-term funding for individuals with HD to ensure access to all necessary services during their lifetime; supporting research and ensuring people in Ireland can participate in international HD research developments; and supporting a sustainable and accessible national genetic service.