Oireachtas Joint and Select Committees
Thursday, 27 February 2014
Joint Oireachtas Committee on Health and Children
Rare Diseases Day: Discussion
10:55 am
Mr. Declan McPhillips:
Yes. Part of the condition and part of the symptoms is cold hands and cold feet all the time for these children. In my house the heating never goes off but the ESB allowance and the telephone allowance have been cut. Sometimes we have to make telephone calls to America about the condition rather than sending e-mails. The cut to the telephone allowance and the ESB allowance does not just affect the elderly, it also affects people with special needs.
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