Ms Sinead Moran:

With regard to the question on the outreach nurses, it has taken a long battle to get these eight girls in place - seven girls and one guy, actually. It has been wonderful. However, they were taken on as key workers to co-ordinate everybody to come together, so they work Monday to Friday from 8 a.m. to 4 p.m., and they do not do out-of-hours or weekends. They were taken on to co-ordinate and they do not do the hands-on work. The bigger picture is that we need the people to do the work in the homes. We need nurses to go in to do the hands-on work, give the parents a break, give the medications and do whatever needs to be done when these kids are at the end of life.

The outreach nurses are wonderful and they have made a difference, without a doubt. Research shows that 25% of people die between nine and five years of age-----