Oireachtas Joint and Select Committees

Thursday, 6 December 2012

Joint Oireachtas Committee on Health and Children

Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland

10:20 am

Ms Jude Bromley:

Senator Landy expressed a special interest in fibromyalgia. I appreciate his admission because many people refrain from mentioning it. Early diagnosis is vital.

As Ms Mooney pointed out, rheumatologists are our main port of call but, unfortunately, the likes of Donegal does not have one anymore. At least 120 people in Donegal have fibromyalgia and they have to make regular trips to the rheumatologists in Manorhamilton, Galway and Dublin. The closest is two hours away. The return of a rheumatologist's clinic to Letterkenny has been promised but that still has not happened. We need it back. It is not satisfactory, unfortunately.

Reference was made to GPs. I am lucky to be on the Donegal community health forum for the Finn Valley area and I have made representations to the primary care teams on a few occasions but, unfortunately, the doctors either do not attend or are not interested. Our representations are still falling on deaf ears.

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