Oireachtas Joint and Select Committees

Thursday, 6 December 2012

Joint Oireachtas Committee on Health and Children

Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland

10:20 am

Mr. John Maher:

It is recognised by the Government over there. The list of supports is provided on the website. In Ireland one has to look for information from the Northern Ireland support group, which should not be necessary because several support groups have been established throughout Ireland. They are not even mentioned on the HSE website. If somebody in Ireland gets fibromyalgia, he or she will visit the website and contact a Northern Ireland address. Why is that the case when we have several support groups? That has to be changed. The website needs to be brought up to date and the research should be carried out. All the HSE needs to do is contact one of the groups and we will give it all the information it needs. The information set out on the website is not correct.

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