Oireachtas Joint and Select Committees

Thursday, 6 December 2012

Joint Oireachtas Committee on Health and Children

Discussion with Fibromyalgia Sufferers of Ireland and Spina Bifida Hydrocephalus Ireland

10:10 am

Photo of Robert DowdsRobert Dowds (Dublin Mid West, Labour) | Oireachtas source

The other question I would have is this. To what extent is there medical research which would help to uncover the mystery of the condition?

As Mr. Kennedy will be aware, I am much more familiar with spina bifida. I worked right beside Spina Bifida Hydrocephalus Ireland's headquarters. I taught several children with spina bifida, two of whom, sadly, died from the condition while I was teaching them. I would be more familiar with his situation.

It was useful to hear Ms Browne's practical input. It demonstrates to us the difficulties of those who suffer from spina bifida and hyrdocephalus. I was conscious of teenagers who suffered from continence problems and their embarrassment in that regard. Her comments, between that and the comment on the need for that urologist, were powerfully made.

I ask her to quickly run through something. There were three other main points and I missed one of them. Was it another one or two support workers that are sought? I understood it to be one but maybe it is two. Am I correct that there was something about a specialist nurse in Temple Street? There also was one point that I missed. I would appreciate it if they could go through them. The groups made a powerful presentation and I hope that we can make progress, particularly on the urologist, as soon as possible.

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