Results 1-11 of 11 for narcolepsy segment:5545273
- Other Questions: Vaccination Programme (14 May 2013)
Joe O'Reilly: ...Every possible measures is in place to ensure rapid diagnosis, with the Mater Hospital sleep clinic providing a six-day service, including Saturdays, to facilitate those where a possibility of diagnosis of narcolepsy exists. The Department has been assured by the HSE that anyone who has a confirmed diagnosis of narcolepsy is fast-tracked through the system to ensure required services are...
- Other Questions: Vaccination Programme (14 May 2013)
Billy Kelleher: I refer to the issue of global information. There may be some evidence coming from abroad, including areas outside Europe, relating to people who have been affected with narcolepsy because of Pandemrix vaccination. If there is such information or if treatment becomes available that assists or benefits these people, will the Government examine the peer-reviewed material and other...
- Other Questions: Vaccination Programme (14 May 2013)
James Reilly: ...is very much an EU-US initiative but it involves other people throughout the world feeding into an information process that will help us improve practice not only in the area of the treatment of narcolepsy but in many other aspects of health care.
- Other Questions: Vaccination Programme (14 May 2013)
Caoimhghín Ó Caoláin: The report prepared and published by the national narcolepsy study steering committee was produced more than one year ago. In the Minister's response at the time of publication he stated that a package of supports would be in place before the summer recess. That was in 2012. We are now almost at the summer recess of 2013 and there is no permanent package of supports in place. There is no...
- Other Questions: Vaccination Programme (14 May 2013)
James Reilly: As I outlined earlier and for the record, by 10 May the Irish Medicines Board had received 48 reports confirming a diagnosis of narcolepsy with symptom onset following the Pandemrix vaccination. The majority of these reports relate to children and adolescents. Further possible cases have been investigated by the HSE and the Irish Medicines Board. As I have pointed out, a range of services...
- Other Questions: Vaccination Programme (14 May 2013)
Caoimhghín Ó Caoláin: .... This is a matter that deserves cross-departmental address but the Department of Health has to be the lead Department. Finally, the advocacy group is also calling for the official recognition of narcolepsy as a disability. That is very important because these children will grow up into young adults and future adult life and their condition may very well affect their employment...
- Other Questions: Vaccination Programme (14 May 2013)
James Reilly: ...disability. The second point is a matter of some hope. I have been told unofficially - I am open to correction - that there appears to be some evidence abroad that some of those who have suffered narcolepsy as a consequence of this vaccination are beginning to recover. This may not, and, I hope, will not be a lifelong disability, but that is not to diminish in any way the huge distress...
- Other Questions: Vaccination Programme (14 May 2013)
Willie O'Dea: 83. To ask the Minister for Health the supports he plans to put in place for persons suffering from narcolepsy and other medical complications following vaccination with Pandemrix; and if he will make a statement on the matter. [22619/13]
- Other Questions: Vaccination Programme (14 May 2013)
Caoimhghín Ó Caoláin: 135. To ask the Minister for Health when the package of supports for children and young persons diagnosed with narcolepsy as a result of vaccination with Pandemrix will be delivered as promised; if he will meet with the parent representatives; and if he will make a statement on the matter. [22554/13]
- Other Questions: Vaccination Programme (14 May 2013)
James Reilly: I am pleased to inform the Deputies that a number of supports are in place for persons diagnosed with narcolepsy following pandemic vaccination. My priority is to ensure those affected by narcolepsy, with symptom onset post-pandemic vaccination, are provided with a range of services and supports to meet their health needs. My colleague, the Minister for Education and Skills, Deputy Quinn,...
- Other Questions: Vaccination Programme (14 May 2013)
Billy Kelleher: The national narcolepsy steering committee reported more than a year ago. Commitments were made and while I acknowledge that there have been meetings with the HSE and other agencies of the State, what the representatives of children afflicted with narcolepsy on foot of the Pandemrix vaccine want is a clear pathway outlined on access to health and education services and some form of redress....