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Seanad: Commencement Matters: Medicinal Products Availability (17 Oct 2018)

Keith Swanick: ...for the drug Spinraza to be made immediately available. Spinal muscular atrophy, SMA, is a group of inherited diseases of the motor nerves that cause very debilitating muscle weaknesses and wasting. It is life threatening, rare and the leading cause of death in infants and toddlers. There are 25 children in this country with this condition. It presents them with several burdens. They...

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