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Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Michael Harty: ...with those services. On behalf of the committee, I welcome, from the Neurological Society of Ireland, Ms Edina O'Driscoll, project manager of the neurorehabilitation demonstrator project and Ms Magdalen Rogers, executive director of the society. I also welcome, from the Disability Federation of Ireland, Ms Joanna McCarthy, senior executive, policy and research and Ms Ava Battles, chief...

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: I thank the Chairman and members for including the issue of services for people with neurological conditions in their work plan and for providing the opportunity to speak on this theme this morning. I would like to introduce Ms Edina O'Driscoll, project manager for the neurorehabilitation demonstrator project. She is here in a voluntary capacity at our invitation in...

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: That is particularly important because we are bringing forward a series of proposed initiatives and it would be useful to know the status of the decision-making.

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: As the Deputy will be aware, a long-standing recommendation of the Neurological Alliance is the provision of a specialist rehabilitation centre. Cork contains the second national neuroscience and neurosurgical centre. The national neurorehabilitation strategy makes a number of recommendations for the development of specialist neurorehabilitation facilities to bring...

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: The need for such a centre is very clear, as it has been for some time.

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: We are at 34 at this stage.

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: We should have 68.

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: The number of consultant neurologists is well below the number we require. We would constantly highlight the need for recruitment. In 2015, the Neurological Alliance of Ireland carried out an audit of neurology services in the neurology clinical programme. The results still stand. In fact, they have worsened if anything. We found that none of the 11 neurology centres...

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: The recommendations of the neurorehabilitation strategy in terms of the development of neurorehabilitation centres and whether all facilities would need to be located on the one site needs to be factored into the decision. There is no doubt in the strategy that additional beds are needed. The roll-out of the national trauma plan will influence where those beds are...

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: The neurological lines are particularly supportive of the neurorehabilitation demonstrator project, as I outlined in my statement, because we see it as joining the various parts in order that the acute service providers, the acute hospitals and the existing rehabilitation units, all the way through to primary care and voluntary service providers, are all involved in one...

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: Is the Deputy’s question on a public information campaign about the alcohol issue or others?

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: The promotion of awareness of neurological conditions through national campaigns is under-resourced. It is an under-recognised strength of individual charities, like MS Ireland and others, that they take on and do this work. They fund-raise because no one else is doing so. It is a huge responsibility on not-for-profit organisations to take on this education and...

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: To respond to Deputy O'Connell's comment on folic acid, and this goes back to the comment we made in response to Deputy Durkan about the voluntary organisations taking up the mantle on this, I am aware that one of our members, Spina Bifida Hydrocephalus Ireland, has been doing work on promoting the use of folic acid, for obvious reasons. That is one organisation that is...

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: I would have a query as to when the problems arise because, whatever about signing someone off as needing a home care package, it is then a question of funding and-----

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: Yes.

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: The Deputy made the point that any medical practitioner would be very willing to sign off on a person as needing a home care package, but there is a chasm between this and actual delivery of the package.

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: We are very pleased that the focus of the neurology clinical programme is now very much on the role of the clinical nurse specialist and increasing that role. Very positive results have been generated by the epilepsy programme and its concentration on the development of the clinical nurse specialist. The lessons that have been learned are being transferred to the...

Joint Oireachtas Committee on Health: Services for those Living with a Neurological Condition: Discussion (8 May 2019)

Ms Magdalen Rogers: Efforts are being made by the groups that are here today. There are also some isolated initiatives and individual clinicians doing their best and taking a role in highlighting and researching the issue. As our colleagues have said today, it must have greater prioritisation. The World Health Organization, WHO, report names neurological conditions as the greatest...