Dáil debates

Tuesday, 17 December 2019

An tOrd Gnó - Order of Business

 

4:15 pm

Photo of Tom NevilleTom Neville (Limerick County, Fine Gael) | Oireachtas source

On page 59 of the programme for Government, there is a reference to a cystic fibrosis, CF model of care. Last Friday, Cystic Fibrosis Ireland stated on its website that the HSE had approved the treatment of the underlying cause of CF for 80% of the CF population. Trikafta is the first approved treatment that is effective for CF patients aged 12 years and over, with at least one Delta-F508 gene mutation, which affects up to 80% of the CF population in Ireland, as was stated. This is subject to approval of the drug by the European Medicines Agency. Once the approval has been sanctioned, will the Taoiseach indicate the timeline that will be put in place so that we will see patients availing of this drug?

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